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Lexicon of Terminology
 
Lexicon of Terminology Employed by Sickle Cell Advocates for Research and Empowerment, Inc.
 
1) sickle cell defier - person with sickle cell disease.
 
2) sickle cell advocate - person belonging to the main administrative cadre of the Sickle Cell Advocates for Research and Empowerment who acts on behalf of the sickle cell community in ways that go beyond their own personal interests, (i.e. a member of S.C.A.R.E.).


3) sickle cell community - general umbrella term that pertains to and encompasses the entirety of the collective sickle cell society. Any individual whose life has been personally affected by sickle cell disease, (i.e. sickle cell defiers, their families and friends), would correctly be designated a member of the sickle cell community.
 
4) carepartner - a family member, significant other or friend engaged in a committed alliance with the sickle cell defier, participating actively in that defier's health care efforts, and functioning as an advocate for him or her whenever necessary.
 
5) caregiver - medical or healthcare professional who administers care to the sickle cell defier.
 
6) caretaker - person who assumes complete responsibility for overseeing and managing the general care and overall needs of a sickle cell defier, (e.g. a parent, a guardian, or home health attendant.)
 
7) physical dependency - state of being where one is gradually conditioned to be physiologically reliant on one or more chemical substances often including but not exclusive to those used as or in medicine, (e.g. narcotic analgesics.) A pharmacological property of narcotic opioids.
 
8) drug addiction - state of being where one is physiologically and psychologically dependent on a drug or drugs that are not, or have ceased to be, medically indicated.
 
9) narcotic withdrawal - a reactive state of somatic distress initiated by the abrupt interruption or partial interruption of an otherwise sustained narcotic influence in a body that has, over time, been physiologically conditioned to depend upon said influence.
 
10) The Philosophy of Defier Accountability - fundamental conceptual principle mandating that we sickle cell defiers answer for our own choices and behaviors, finally taking full responsibility for our own lives.
 
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